Hoppy received her DDX3X diagnosis on 2/2/2021. When we received that call from the Genetics Team at C.S. Mott's Children's Hospital in Ann Arbor, we were given information about the DDX3X Foundation - an amazing resource that connects families with kids with the syndrome, providing support and compassion like I have never seen before. This foundation, founded by 2 DDX3X Moms has been [AMAZING].  (Don't forget to check out the Foundation website DDX3X Foundation

This year, on June 12th - is the very first [EVER] International DDX3X Day! We are so excited to have a day dedicated to DDX3X syndrome in hopes of raising awareness for DDX3X. The goal of this particular fundraiser is for the Foundation to raise $150,000 to develop Centers of Excellence - faclities that will be designed and cater services to those diagnosed with DDX3X. 

In honor of the first ever International DDX3X Day on 6/12 - our goal is to raise $612.00 which will go directly to the DDX3X Foundation.

All and any contributions to this amazing cause, in honor of our Hoppy are greatly appreciated. 

The inaugural DDX3X Day will be held on Saturday, June 12, 2021. To commemorate the day, The DDX3X Foundation will host an international family day for DDX3X Syndrome patients and their families to participate in person or virtually in a community-building event. To increase awareness, The DDX3X Foundation is asking those that know someone impacted by the disorder to wear purple on June 12th, participate in a virtual 5k, and post on their social media accounts using the hashtag #DDX3XDay. In addition, in an effort to generate funding for research, the Foundation is hoping each impacted family will raise $612 in celebration of the 6.12 date and help reach the fundraising goal of $150,000 to develop Centers of Excellence for DDX3X Syndrome. Centers of Excellence are facilities with clinicians and staff who specifically understand the diagnostic criteria of the disorder and are dedicated to identifying and meeting the various needs of those diagnosed.