Emelia's DDX3X Fundraising Page
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Emelia's DDX3X Fundraising Page
Fundraising Page Image

We are so excited for our first Annual International DDX3X Day coming up on June 12! If you'd like to help us, here are a few ways you can join in:

SPREAD THE WORD & WEAR PURPLE ON SATURDAY

MAKE A DONATION 

https://ddx3x.org/the-ddx3x-foundation/

JOIN OUR VIRTUAL RUN

https://ddx3xfoundation.z2systems.com/np/clients/ddx3xfoundation/event.jsp?event=8&fbclid=IwAR0TDGtW544pJsP_85c11dSg8ico31dknQEknwGkJaaB-gIT8eLVslv1q7w

 

THANK YOU!!

 

ABOUT DDX3X Day 2021


The inaugural DDX3X Day will be held on Saturday, June 12, 2021. To commemorate the day, The DDX3X Foundation will host an international family day for DDX3X Syndrome patients and their families to participate in person or virtually in a community-building event. To increase awareness, The DDX3X Foundation is asking those that know someone impacted by the disorder to wear purple on June 12th, participate in a virtual 5k, and post on their social media accounts using the hashtag #DDX3XDay. In addition, in an effort to generate funding for research, the Foundation is hoping each impacted family will raise $612 in celebration of the 6.12 date and help reach the fundraising goal of $150,000 to develop Centers of Excellence for DDX3X Syndrome. Centers of Excellence are facilities with clinicians and staff who specifically understand the diagnostic criteria of the disorder and are dedicated to identifying and meeting the various needs of those diagnosed.

Supporters
Name Date Amount Comments
Amy and Matt Perkins 06/12/2021 $26.06  
Tim Downs 06/10/2021 $103.30  
Karen Byrne 06/09/2021 $100.00  
Valerie Smaltini 06/09/2021 $103.30 Keep on keeping’ on! Go get em, Emelia! Xoxoxo
Maria Borland 06/09/2021 $206.28 Let’s do this!! You rock! ❤️❤️
Amanda Desmarais 06/09/2021 $51.80 Emelia, You inspire me every day. You are such a smart and hard working student. I can't wait to see what you do in the future because I have no doubt you will do great things! Love, Mrs. Desmarais
Nancy & Joe Byrne 06/09/2021 $104.37 Emelia you are truly amazing. Lots of love ❤.
  Total $695.11