As many of you know, my daughter, Georgia,  has a rare disease called DDX3X syndrome. I am asking our friends and family to consider making a donation to the DDX3X Foundation to support research for this disease. All contributions go directly toward our continuing efforts to find a cure.

The inaugural DDX3X Day will be held on Saturday, June 12, 2021. To commemorate the day, The DDX3X Foundation will host an international family day for DDX3X Syndrome patients and their families to participate in person or virtually in a community-building event. To increase awareness, The DDX3X Foundation is asking those that know someone impacted by the disorder to wear purple on June 12th, participate in a virtual 5k, and post on their social media accounts using the hashtag #DDX3XDay. In addition, in an effort to generate funding for research, the Foundation is hoping each impacted family will raise $612 in celebration of the 6.12 date and help reach the fundraising goal of $150,000 to develop Centers of Excellence for DDX3X Syndrome. Centers of Excellence are facilities with clinicians and staff who specifically understand the diagnostic criteria of the disorder and are dedicated to identifying and meeting the various needs of those diagnosed.