At 5 years old we were blessed and relieved to find an answer behind Paige's disabilities. We always knew her condition was different but we had no idea just how rare. We see many specialists but what we're lacking is a doctor that specializes in DDX3X Syndrome. Often times I'm told I know more about it than they do. Many parents wish they could take their child see a doctor with knowledge of this medical diagnosis. That's where we come in. We are parents advocating for our girls (and a few boys) and hoping to gain better care and more understanding of our children. 
 

We couldn't be more proud of Paige. Everyday she's showing us just how smart and capable she is. Paige is non-verbal which makes it hard to know what she understands. She is blowing us away with showing us she knows her colors and and is capable of following many one step commands. She still loves her Mickey, music and water and loves anyone that will dance with her!